I picked Alan up from the hospital today. He is doing well but sore. He is not at all happy about staying behind while Cheyenne and I drive to St. Louis in a couple of hours. I really have no choice. His doctor said he cant go and Chey's doctor said I cant postpone her surgery.
I will update after we return in a day or so.
Showing posts with label surgery. Show all posts
Showing posts with label surgery. Show all posts
Tuesday, April 6, 2010
Monday, October 12, 2009
Surgery update
OMGoodness...We had a major crisis yesterday (grandbaby mama drama) and we also had a death in the family, so that delayed my update. It has been so crazy around here I havent had a chance to update till now.
Cheyenne's surgery went great. It was closed again, so he had to re-open it. Dr. Huddleston says it will need to be re-opened every three months and he doesnt think it will ever be any longer in between and may become a shorter length of time in between. He doesnt want to do the stint right now because the disadvantages outway the advantages, so we will continue to go to St. Louis every three months for about a year and then place the stint at that time. That is what the doctor has said will happen....well, he isnt THE PHYSICIAN, so we will see what HE wants to do and follow that plan.
We are home now and Cheyenne is doing great and is in school as I type this.We will follow up with the local CF doctor the end of the week and by then they should have the culture results, so we will see if she will require I.V. antibiotics.
Please keep my sister, her husband, daughter and mother n law in your prayers.
Love and hugs to all and a great big thank you for all the prayers.
Cheyenne's surgery went great. It was closed again, so he had to re-open it. Dr. Huddleston says it will need to be re-opened every three months and he doesnt think it will ever be any longer in between and may become a shorter length of time in between. He doesnt want to do the stint right now because the disadvantages outway the advantages, so we will continue to go to St. Louis every three months for about a year and then place the stint at that time. That is what the doctor has said will happen....well, he isnt THE PHYSICIAN, so we will see what HE wants to do and follow that plan.
We are home now and Cheyenne is doing great and is in school as I type this.We will follow up with the local CF doctor the end of the week and by then they should have the culture results, so we will see if she will require I.V. antibiotics.
Please keep my sister, her husband, daughter and mother n law in your prayers.
Love and hugs to all and a great big thank you for all the prayers.
Saturday, October 3, 2009
Birthday and stuff
Cheyenne's birthday went great. Everyone had a fun time. Ciara sang "Jesus take the wheel" at church on Missionette Sunday. She did fantastic and received a standing ovation. There was not a dry eye in the sanctuary...not even the men!! Of course, I didn't get it video taped because I was doing the service that morning and didn't think I could tape it...I have got to get a tripod!!
Cheyenne was Baptised on Sept. 27Th. We are very proud of her.
Cheyenne had her 3 mo. visit with the endocrinologist on Tuesday. The injections she has been getting every 28 days for the last year, has not been working. The doctor is not comfortable with raising the dosage from 11.25 to 15 on a 9 yo, so she will be getting this shot every 21 days for the next three months and then he will see if it is starting to work, if not, she will have to be raised to the 15 anyway.
Ciara does have to have surgery on her hand/wrist. We go back on Wednesday to meet with the surgeon to see what he has to do and when he wants to do it...I just hope it doesn't interfere with Chey's Make a Wish trip...lol..but at the same time, I don't want Ciara in pain either...what is a mother to do?
We are still on track for St. Louis. We will leave on the 8Th as planned and not sure when we will return home.
Much love to all,
Debbie
Cheyenne was Baptised on Sept. 27Th. We are very proud of her.
Cheyenne had her 3 mo. visit with the endocrinologist on Tuesday. The injections she has been getting every 28 days for the last year, has not been working. The doctor is not comfortable with raising the dosage from 11.25 to 15 on a 9 yo, so she will be getting this shot every 21 days for the next three months and then he will see if it is starting to work, if not, she will have to be raised to the 15 anyway.
Ciara does have to have surgery on her hand/wrist. We go back on Wednesday to meet with the surgeon to see what he has to do and when he wants to do it...I just hope it doesn't interfere with Chey's Make a Wish trip...lol..but at the same time, I don't want Ciara in pain either...what is a mother to do?
We are still on track for St. Louis. We will leave on the 8Th as planned and not sure when we will return home.
Much love to all,
Debbie
Saturday, September 5, 2009
Turning 9
Cheyenne's birthday is two weeks away...I cant believe we have had her for almost 9 years. I need to get busy on the party planning!!
Cheyenne is coughing more and is showing signs of not feeling well. I will not say she is getting sick!!!
I finally made the appointment for her 2nd trip to St. Louis Childrens, to repeat the surgery she had July 1st, on her left main bronchus. It is for Oct. 9th...of course we have nothing arranged, nor do I know how it will work out this time.
Make a Wish has contacted me...her will is granted and is tentatively scheduled for November 1-7. I am really excited about..terrified she will be sick, but excited all the same.
In my last post, I asked for prayer for Xoey. When she went to the pediatrician a couple of weeks ago for routine shots, she noticed something with her heart that didnt sound right. She sent her for an EKG. The results show a whole in her heart. They are not sure right now what needs to be done. Please continue to pray for her.
Thanks for reading...please leave a comment so I know were here!!!
Cheyenne is coughing more and is showing signs of not feeling well. I will not say she is getting sick!!!
I finally made the appointment for her 2nd trip to St. Louis Childrens, to repeat the surgery she had July 1st, on her left main bronchus. It is for Oct. 9th...of course we have nothing arranged, nor do I know how it will work out this time.
Make a Wish has contacted me...her will is granted and is tentatively scheduled for November 1-7. I am really excited about..terrified she will be sick, but excited all the same.
In my last post, I asked for prayer for Xoey. When she went to the pediatrician a couple of weeks ago for routine shots, she noticed something with her heart that didnt sound right. She sent her for an EKG. The results show a whole in her heart. They are not sure right now what needs to be done. Please continue to pray for her.
Thanks for reading...please leave a comment so I know were here!!!
Thursday, August 27, 2009
Time Flies
Cheyenne and I did go to church camp..Ciara was able to go with us...I bet Satan wasnt happy about that. Ciara was chosen as Camper of the Year and gets free tuition for next year. Cheyenne had an awesome time.
We went for Cheyenne's monthly CF clinic visit on the 10th. She gained two kilos, PFT's went up 20% and he said she sounded beautiful. He also said she had a remarkable improvement and we dont have to see him until September. We have never been able to go two months between appointments and usually dont make it one month without some sort of contact with him or his office. We do still have to go back to St. Louis Children's the end of September for another surgery on her left main bronchus. The two week followup with her CF doc will coincide with her October clinic visit.
I am pleased to announce the birth of my newest nephew, Greyson Quinn...born 8/21/09. Both mom and baby are doing well. Big brother, Nathan, is very pleased too.Of course school has started and is going great.
Please be in prayer for my granddaugher, Xoey. I will update more about that later.
Wednesday, June 24, 2009
Five more days
Until we leave for St. Louis. We are all nervous about it, but trusting in the Lord. We know He will take care of Cheyenne. It is the finances of the trip that we are having a hard time with..lol. We dont really know what will take place once we get there. We meet with the surgeon on the 30th and then surgery on the 1st. We wont know till we get there if we have a room at RMH. Wont know till Sunday, for sure, if we have a pilot that can take us...lol..no wonder I cant sleep..lol. Just wanted to update on everything...okay, only on some things.
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