Hi all..Cheyenne is doing fairly well. She is getting really bored sitting around the house since she is feeling better. We went to the doctor on Tuesday for a post hospital/IV check. There are some concerns so he ordered blood work..we are still waiting to hear about the results. She will continue on with home IV's for one more week.
Cheyenne wants to show rabbits in 4H so I told her she had to clear it with her doctor first. She asked him and to my amazement, he said it would be okay..but she had to understand, if she started gettting sick..they would have to go. Since she is sick so much, I am not sure how we are going to know if it is from the rabbit(s) or not..lol.
Both girls are in 4H and have a Speech and Demonstration contest tonight. I am so shocked Cheyenne is planning on giving a speech. She found out last night that she will be alone on a big stage, so we will see if she really does give her speech...lol. Ciara is doing a demonstration and she is not shy at all so I hope we dont have to tell her to get off the stage..lol.
Chris is doing pretty good. It turned out to be two bones..one is chipped the other is fractured. He is stubborn (gets it from his dad) and has already returned to work.
My grandmother was released from the hospital. She is doing pretty good, too. I want to go see her but its not possible right now.
I found out last night that a friend of mine from forEVER ago passed away. I have known him for about 32 years..we had some good times and he will be missed.
Another friend of mine needs prayer for her grandson. He is 8 months old. He fell and thought he had a concussion. He doesnt, but some of his other tests are coming back "not normal" so they are trying to find out what is wrong with him.
Love and hugs,
Showing posts with label IV's. Show all posts
Showing posts with label IV's. Show all posts
Thursday, April 1, 2010
Tuesday, January 5, 2010
Long story short....
Chey did great...didnt get admitted...the bronchus was narrowed down quite a bit so he opened it back up. He said there is another problem and is not sure which of the two is causing the other.
It would be major, major surgery to correct this new found problem so right now, we are doing nothing but waiting.
We are now home from St. Louis. Cheyenne has an appointment with her CF doctor tomorrow. Hopefully, he will say she can stop the IV's and return to school. It has been one month already.
It would be major, major surgery to correct this new found problem so right now, we are doing nothing but waiting.
We are now home from St. Louis. Cheyenne has an appointment with her CF doctor tomorrow. Hopefully, he will say she can stop the IV's and return to school. It has been one month already.
Friday, January 1, 2010
Happy New Year!!
I hope everyone had a great time while staying safe! We went over to our pastor's house for food, fun and fellowship. It was a great time..Julie, I finally played Bunco!! I got the biggest looser award..Yea me!
Chey is still on her IV's, doing pretty good. Still has a very wet sounding cough but only occasionally. I am getting pretty good at all the IV stuff and remembering to monitor her blood pressure.
I had previously said they had done a bunch of tests while we were in the hospital and all the results were coming back normal or close to it. Well, that stopped with the echo.
The echo showed she has Mild Aortic Stenosis and Left Ventricular Hypertrophy. Hence the reason for the blood pressure problems. He said, while he is not dismissing this as a mild problem, we have bigger problems right now and that is the loss of lung function. He is pretty sure the cause is the Left Main Bronchial Stenosis.
We are gearing up to leave on Sunday for St. Louis..Chey has to be at Children's on Monday morning at 5:45 AM. I have been on the phone with same day surgery and the surgeons office for the last few days trying to get things straightened out. Same day surgery thinks she is too sick to have surgery..surgeons office said not to worry about what they said...she is so sick because she needs the surgery. The doctors associate also said we may be at a point in treatment that we need to start seeing the CF team in St. Louis. I am not so sure I like that idea for several reasons. 1) We would be saying our local doc is not good enough to care for her. 2) she is so far progressed that local doc cant care for her. 3) we are back to being close enough for them to use the T word.
We also discussed the fact that the every 3 months thing is not working and they may need to do something different as far as opening the bronchus. She did also say, the main doctor may still want to do the dilitation and just do it every two months. Which would work a little easier for us since her local CF doc wants her to start going into the hospital every three months for a tuneup. He said if she is not sick, it would be for 2 weeks, if she is..it would be for 3 weeks.
I really dont know how people cope with chronic illness and such if they dont know the Lord. Sometimes it seems too hard with Him. We have to trust in Him....and we do!!!
I appreciate your prayers and kind words..I will update on Monday after Cheys surgery.
Love and hugs,
Debbie
Chey is still on her IV's, doing pretty good. Still has a very wet sounding cough but only occasionally. I am getting pretty good at all the IV stuff and remembering to monitor her blood pressure.
I had previously said they had done a bunch of tests while we were in the hospital and all the results were coming back normal or close to it. Well, that stopped with the echo.
The echo showed she has Mild Aortic Stenosis and Left Ventricular Hypertrophy. Hence the reason for the blood pressure problems. He said, while he is not dismissing this as a mild problem, we have bigger problems right now and that is the loss of lung function. He is pretty sure the cause is the Left Main Bronchial Stenosis.
We are gearing up to leave on Sunday for St. Louis..Chey has to be at Children's on Monday morning at 5:45 AM. I have been on the phone with same day surgery and the surgeons office for the last few days trying to get things straightened out. Same day surgery thinks she is too sick to have surgery..surgeons office said not to worry about what they said...she is so sick because she needs the surgery. The doctors associate also said we may be at a point in treatment that we need to start seeing the CF team in St. Louis. I am not so sure I like that idea for several reasons. 1) We would be saying our local doc is not good enough to care for her. 2) she is so far progressed that local doc cant care for her. 3) we are back to being close enough for them to use the T word.
We also discussed the fact that the every 3 months thing is not working and they may need to do something different as far as opening the bronchus. She did also say, the main doctor may still want to do the dilitation and just do it every two months. Which would work a little easier for us since her local CF doc wants her to start going into the hospital every three months for a tuneup. He said if she is not sick, it would be for 2 weeks, if she is..it would be for 3 weeks.
I really dont know how people cope with chronic illness and such if they dont know the Lord. Sometimes it seems too hard with Him. We have to trust in Him....and we do!!!
I appreciate your prayers and kind words..I will update on Monday after Cheys surgery.
Love and hugs,
Debbie
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