Great Strides for Cystic Fibrosis

Please help in any way you are able. No amount is too small, it all adds up. You can donate by clicking on the link on the right...please feel free to pass this along. If you are interested in joining out team and walking with us on May 15th, please let me know ASAP, as I need to order shirts.

Suggested amounts based on information about Cheyenne
$9.19: Chey was born on 9/19/2000.


$5.11: Chey weighed 5 pounds 11 ounces when she was born .


$4: Chey weighed 4 pounds at 1 month due to failure to thrive.


$37: the current lifespan predicated for those with CF is 37 years, if born today.


$74: DOUBLE the life expectancy for CF…Chey's going to get there with your help.


$9.50: Chey has beaten this disease for 9 1/2 years already.


$5: The age Chey was when she was finally diagnosed with CF.

$40.05: the number of miles, one way, we drive to St. Louis, Mo.(405 miles per Mapquest) for treatment at St. Louis Children's Hospital.


$2: Chey needs her two lungs to remain healthy to beat this disease and they want to remove one of them.



$60: the number of minutes we spend each day on breathing treatments.


$20: the number of hours Chey spends getting IV treatment.


$50: The number of pills Chey takes daily to keep her healthy.

$100: our dream is for Chey's lung function to be 100% (sadly, its not half of that).

Getting Paroled

We have been here for two weeks (today). Things have definately improved and she is supposed to get to go home on Tuesday, providing we get good results on the echo. The tests on her kidneys, came back good except for high protein in her urine. He is not overly concerned right now and will check it again in three months, when she is not sick.




Chey is still having problems with her blood pressure so we will have to monitor it at home. He wants me to use a monitor that has a print out or records the readings. So I will have to find one that I can afford and get it before we go home. She will continue her blood pressure medicine, also.



He added a new medicine for her CFRA (Cystic Fibrosis Related Arthritis). So far, it is not helping too much...but we will see.



She will also go home on two I.V. meds and will stay on them until we return from St. Louis. She has an appointment on the 4th.