The other shoe dropped....HARD!!

We got home last night (Tuesday). I thought I would just wait to update until after we went to Chey's local CF doctor today.




Cheyenne's PFT's came up 10% since they opened the bronchus back up. Dr. C said she can stop the IV's, at least for a few days, to see how she does. Her cough is increasing again, but he wants to wait and see if it is just because of the procedure she had done. He also said she can go back to school on Monday. She is so happy about that since she hasnt been since the 1st of December.

Doc also said he had a long talk with the surgeon in St. Louis on Monday. They were both discouraged because of the condition of the bronchus. Apparently, it was totally closed off and in light of the new developement, they both feel, Cheyenne will need major surgery to see if they can correct some of the damage that is causing all this problem. Neither of the two docs are able to do this surgery, so local doc will be in contact with Cincinnati Children's, to see if someone there can help her.



Two weeks ago, one shoe dropped with the discovery of the hypertension/heart thing. Today, the other shoe dropped...along with my heart.



One year ago today, Cheyenne got a port. At the time, I thought that was a very bad thing. I stand corrected.