Hi everyone...well we went back to the clinic on Monday...doc was supposed to have info for us about Minnesota, but no, he didnt...he still hasnt called them...now he wants to wait till after the sinus surgery. We should find something out about that tomorrow, we see the ENT at 3:00.Her PFT's are unchanged overall from last time (10 days ago) but he did go ahead and discontinue the IV antibiotics....he sent us for chest xrays..for the first time in I dont know how long, they are clear, no infection, just the normal CF stuff...Praise the Lord for that.

I had to make another ER trip last night...with Ciara this time. She had a fight with the trampoline and she didnt win. After waiting for 5 hours, she is sporting a temporary cast..aka a hard splint. We will follow up with the ped doc on Thursday and see what she wants to do.

Has anyone heard of FRED on youtube? He has to be the most annoying kid in the world...I cant stand him...he talks like he has been sucking helium.I will try and update tomorrow after we see the ENT.Night everyone...take care,Debbie